CHIP ME - IS1303

Citizen's Health through public-private Initiatives: Public health, Market and Ethical perspectives (COST Action IS1303)

learn more »

For more info!

CHIPme  is
a community of researchers and stakeholders to promote public-private initiatives in public health genomics
 
Ethics
 
Law
 
Science
 
 
 
 
 
Opinion
by Carlos Luis Parra Calderón on 1 December 2016
In recent years, the US Federal Government initiative on Precision Medicine requires key challenges for the development in biomedical research and healthcare to be addressed. This initiative has been extended to the rest of the world, adopting diversity of approaches according to the context of each country, region and respective health system. Among the challenges, it is essential to establish strong ethical pillars where privacy and trust must be foundational features of this approach to medicine, while allowing the continuity of the patient’s engagement (as the main actor of this initiative). In this sense, biomedical informatics is a field of science that can and should provide methods and tools to meet these challenges effectively.
Review
by Heather Skirton on 10 September 2016
Direct-to-consumer (DTC) genetic tests have been on offer for over a decade, allowing members of the public to purchase a package of genetic tests over the Internet. Offering a package of tests in this way has become increasingly possible because genomic technology enables us to analyse many sections of the DNA at once, instead of the looking at small sections one at a time.
Review
by Jan Helge Solbakk on May 1 2016
Man has always been engaged in activities aimed at controlling and fighting threats against life and health. At earlier times magic and religion had important roles to play in explaining disease, death and misfortune as well as in generating strategies of combat against such dangers. Today, disease, death and misfortune have become secularised, individualised and privatised. Disease is no longer perceived as a shared common destiny, but as an individual experience.
Review
by Elia Stupka on May 1 2016
Many might have heard of the 1,000$ genome, until recently a dream, as of 2014 a concrete reality, thanks to the ever cheaper technologies of DNA sequencing. The rapidly falling cost of data generation (faster than Moore’s law, as countless slide decks keep reminding us), however, has allowed us to realize the next costly bottleneck: data interpretation.
Review
by Michele Loi on May 1 2016
Food labels and genetic tests are more similar than they appear. Attitudes of public health experts and policy makers are very different, however. Can we justify this? First, the analogies. 1. They are indications about health risk. Food labels provide consumers with information about the nutritional qualities of food; the newest kind of food label even try to convey information about the “health risk” associated with a specific type food, for instance, food high in salt or sugar content.
Opinion
by George P. Patrinos on May 1 2016
A growing number of different private diagnostic testing laboratories provide a wide variety of genetic testing services, using the direct-to-consumer (DTC) business model. These genetic tests aim to identify mutations leading to common Mendelian disorders, to individualize drug treatment, to determine an individual’s risk of a complex diseases, etc. Recently, molecular genetic testing services are also offered for sale over the counter in pharmacies, by promoting saliva and buccal swab collection kits (for DNA isolation).
6
 
Load More
Latest Tweets